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Netwd Health Directory
Tuberous Sclerosis
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Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program
Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
Information and support for persons affected by Tuberous Sclerosis Complex in Canada.
Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections.
Kolten's Tuberous Sclerosis Page
Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him.
Marian's Life with Tuberous Sclerosis
Marian's story. Information about the disease, pictures, contacts, medicine, links.
Matthew's Site for Tuberous Sclerosis Awareness
Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.
National Library of Medicine
A list of synonyms, a summary and major features of tuberous sclerosis.
NORD: Tuberous Sclerosis
Offers alternative names, a general discussion and further resources.
Pediatric Oncall- Tuberous Sclerosis
Offers commonly asked questions about this disease.
Team Tamara
Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.
Tuberous Sclerosis
A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Tuberous Sclerosis - Lisa's Site
An incurable genetic condition that causes tumors to grow in various places in the body.
Tuberous Sclerosis Alliance
US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
Tuberous Sclerosis Association
UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
Tuberous Sclerosis Fact Sheet
Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
Tuberous Sclerosis Hub
A brief definition of, followed by links to overviews, research articles, case reports and images.
Did you know?
There are six diseases included in the group of myeloproliferative disorders and this group includes chronic myelogenous leukemia (CML), polycythemia rubra vera (PRV), chronic idiopathic myelofibrosis, essential thrombocythemia (ET), chronic neutrophilic leukemia, and chronic eosinophilic leukemia.
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