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Netwd Health Directory
Shwachman Syndrome
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The CaF Directory
A definition of Shwachman syndrome, its inheritance pattern, pre-natal diagnosing and a support group in the United Kingdom.
Katie's Journey
Katie has Shwachman-Diamond Syndrome and needs a bone barrow transplant. Find disease information and links to support organizations.
NORD: Shwachman Syndrome
Offers a general discussion, the synonyms and further resources.
Shwachman Syndrome
A mothers story to diagnose this disorder before a team of doctors could.
Shwachman-Diamond America
Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research.
Shwachman-Diamond Syndrome Family/Friends
An email list for families, friends, parents and individuals affected by Shwachman-Diamond Syndrome.
Shwachman-Diamond Syndrome International
Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available.
Did you know?
Complications Polycythemia rubra vera may vary from person to person and may include development of blood clots or bleeding.
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