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Netwd Health Directory
Sanfilippo Syndrome
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Bennett Children's Foundation
Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
Ben's Dream
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
Children's Medical Research Foundation
A non-profit foundation formed to raise and grant funds for research to find a cure for Sanfilippo Syndrome.
MPS III: Sanfilippo Syndrome
Information, including the causes, different forms, the inheritance and how the disorder progresses.
NORD: Sanfilippo Syndrome
Offers a list of synonyms, a general discussion and further resources.
Pediatric Database
Offers a definition, the epidemiology, pathogenesis, clinical features, investigation and management.
Did you know?
myeloproliferative disorders are characterized by production of too many of certain types of blood cells are made in the bone marrow. There is a great deal of overlap in the features of various myeloproliferative disorders and may transform from one from to another.
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