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Netwd Health Directory
Porphyrias
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Acute Intermittent Porphyria Forum
Information and links about Porph. Includes registration form for an email list.
The American Porphyria Foundation
Non-profit organization advancing awareness, research, and treatment of Porphyria. Fact sheets and links to related resources.
Canadian Porphyria Foundation
Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information.
Diagnosing the Porphyrias
An article by Thomas G. DeLoughery, Associate Professor of Medicine.
EPP
Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
King George II and Porphyria
Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
Me and AIP
Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
Pediatric Oncall
Information on porphyrias including the various types and its management.
Porphgroup
An e-mail group at Yahoo dealing with the metabolic disease porphyria.
Porphyria
From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
Porphyria
A look at the different types of these disease and some of their characteristics.
Porphyria Page
A patient guide for all people with this disorder. Compiled by Professor Michael Moore.
Porphyria: The Unknown Disease
Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.
Porphyria: The Woman Who Has The Vampire Disease
Review on this book on porphyria written by Lenore B. Weinstein.
Porphyrias: Diagnosis and Treatment
Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed.
Prophyria in Charlottesville
An e-mail sent to Professor Huskey from a person working on a rescue squad.
Suite 101
Offers links and articles about Porphyria.
Did you know?
Type-2 diabetes accounts for more than 90% of all diabetes worldwide.
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